BROOKLYN, NEW YORK—In 2011, just before Dayna and Manni Scarso’s son, Pietro, turned three, they discovered his body was deteriorating from the inside out. The Scarsos began suspecting problems when they noticed Pietro’s younger brother, Nico, running up and down stairs while Pietro made slow, valiant attempts, but would then get stuck. Looking back, Manni remembered […]
One local organization celebrated more than just a successful fundraiser on Saturday, September 24. Pietro’s Fight — a nonprofit co-founded by Dyker Heights parents Dayna and Manni Scarso in hopes of helping find a cure for Duchenne Muscular Dystrophy (DMD) — hosted its fourth annual “Pietro’s Fight to the Finish Line” 5k over the weekend… read full […]
One local family is celebrating the U.S. Food and Drug Administration (FDA)’s recent approval of Exondys 51 (also known as Eteplirsen), the first drug approved to treat patients with Duchenne Muscular Dystrophy. The disease – known for short as DMD – is a recessive X-lined form of muscular dystrophy that affects one in every 3,500 […]
U.S. Rep. Michael Grimm turned into a waiter for an afternoon, pouring tea and offering scones on a tray to a group of highly accomplished women at a luncheon he hosted in their honor on Wednesday. “Victorian Tea, not bad, right?” the congressman said to the group as he held the tea pot and got […]
For the second straight year, Pietro’s Fight held its PJs for Pj event, a community wide fundraiser in which schools hold a pajama day in order to raise funds to combat Duchenne Muscular Dystrophy, a disease little Pietro Scarso has been battling for three years.
The parents of a Bay Ridge boy suffering from a rare form of muscular dystrophy are bringing their fight to save his life to Washington D.C. next month. Manni and Dayna Scarso said they will speak at a Food and Drug Administration (FDA) meeting in the nation’s capital on Jan. 22 to urge the agency […]
Runners, young and old, hit the pavement on Saturday, September 19 at the Third Annual Pietro’s Fight to the Finish Line – a 5k benefiting Duchenne Muscular Dystrophy (DMD) research via Bay Ridge-based organization Pietro’s Fight. “It was a beautiful day,” said Ridgeite Dayna Scarso, co-founder of Pietro’s Fight and loving mother to Pietro, a […]
Ridgeites will, once again, put their best foot forward in honor of six-year-old Pietro Scarso, a Bay Ridge boy fighting the good fight against Duchenne Muscular Dystrophy (DMD), when, on Saturday, September 19, they turn out for the Third Annual Pietro’s Fight to the Finish Line, a 5k benefiting Pietro’s Fight. “We already have about […]
A Bay Ridge boy bravely battling a rare and deadly form of muscular dystrophy is finding new hope in an experimental drug he is taking as part of a clinical trial 3,000 miles from home. Pietro Scarso, 6, suffers from Duchenne muscular dystrophy, a disease that affects a patient’s motor skills and hampers the ability […]
I scream, you scream, we all scream for ice cream – and good old fashioned rides on a rollercoaster. Kids were treated to a fun-filled afternoon at Adventurer’s Family Entertainment Center – and a truckload of free ice cream courtesy of Pepsi and Mr. Softee – at Pietro’s Fight’s third annual children’s event, “Bump, Crash […]